Hi, my name is Ben, and I am seven days old today

Hello,

Seven days ago this morning, at 5:08am I was born. It was a fairly quick affair, for which Mum was rather glad, but also a little too quick at the same time.

After I was born, the wonderful midwives and doctors at the Rotunda noticed that I was not doing very well, so they cleaned me up and got me ready to be taken away from Mum and Dad to a special place. I was happy when Mum got to hold me for a minute, but sad also that it was only for a minute.

After they took me to the NICU (neo natal intensive care unit), they had to do lots of things to me, tubes and wires and all sorts of things. Not very nice really, but I figured they had to do it.

I was not able to see Mum and Dad until later in the morning, and when I saw them, they seemed happy and sad at the same time. Apparently, I have a condition that is called Down Syndrome. I’m not too sure what that means yet, but what I do know is that Mum and Dad will look after me and love me, just as much as I will look after them and love them.

Later that evening, I was not feeling well at all. A very nice lady doctor spent a long time with me to make me feel better. When Mum and Dad came in to see me again, they looked sad and also very frightened. The nice lady doctor was talking to them and explained to them what was making me feel so bad. She used lots of words that were complicated and she had a worried look on her face, she also said that I was a very sick baby.

She said that what I had was called Pulmonary Hypertension, and it was something to do with how my breathing had changed from the way babies should breathe when they come out of their Mum’s belly, to how I used to breathe when I was inside Mum’s belly. This is not a good thing, because what happens is that one side of my heart does not get to work how it should, and that affects how my lungs work. My blood pressure gets affected by this, and that means that I am on a lot of medication to make everything work the way it should again.

Since last week, I have been getting better, but very slowly and in small increments. Because I am on so many drugs, getting the balance right is hard. They are trying to wean me off some of the drugs, but sometimes I don’t like that, and they have to go back to the levels I was at before. The ventilator also has a mixture of gases coming into me, and for the moment I still need that, and may need it for some time yet.

All of the lovely nurses in NICU take great care of me, and are very nice to Mum and Dad and they answer all of their questions and that helps them understand things. They don’t hold back with the information that they give them, and although that is hard for Mum and Dad to hear at times, it helps them to know what is going on.

I have a load of neighbours in NICU, and I hope that they get well soon too, I know that everybody there is doing their utmost to help them get better.

Before I go, I want to thank everyone who say hello to me, and who are thinking of me. I know about you all because Mum and Dad tell me of all the nice things you say and do for them when they come and visit, and that helps me to get a little stronger everyday.

Bye for now, I have to go and get better.

My name is Ben, and I am seven days old today.

11 Comments

  1. Emily gallagher

    This is a beautiful post.
    I wish you and your lovely parents all the best and I look forward to hearing how your doing.
    Welcome to the world Ben.

  2. Sophie

    My beautiful little nephew, this is your auntie Sophie in France. I might be far away but I think of you everyday, all the time…Hang in there Ben, don’t forget that you’re an Eibrand and we are fighters!
    I can’t wait to see you, hold you and smother you with kisses, so get better soon. And tell your Mum and Dad that I think of them all the time too (and that I’ll see them soon), and tell your Dad, my darling brother, that I love him and that what he wrote is beautiful. A bientôt mon petit coeur

  3. Han är så fin. Vi tänker på er och hoppas av hela våra hjärtan på att han snart kryar på sig och att ni alla får åka hem tillsammans. Kram Caroline

  4. Lotta

    Most welcome to this world Ben!!! It was great to hear all about your first week although it seems to be a little uphill…..you look like a strong boy and Im sure youll be home with mom and dad sooner than you think . Hope to meet you some day. Love and the best of whishes from Lotta.[your dads moms cousin :-)]

  5. Johanna

    Hej Ben!
    Vad härligt att höra att du blir bättre! Vi tänker på Dig och sänder massa kämparkraft till dig, du klarar det!
    Kram från Johanna, Andy, Lilly och Carl Otto.

  6. judi

    Dear Ben
    You write a wonderful record of your life and I am sure that Mum and Dad are very proud of you. They are such special people and you are special as well so togther you will have a good life, an interesting life but above all a life full of love and care.
    I know your Mum and Dad would love to have you at home and are just waiting for you to get better so that that they can take you there.
    Lots of people who you do not know yet are thinking about you and Mum and Dad every day and sending cuddles, hugs and endless love to you all

  7. Bittan

    Hi Ben,
    Thank you very much for letting us know how you are doing. I really had no idea that your first week was all that tough and I am so glad you have pulled through it. I hope you will continue in the same manner and get a little bit stronger every day as I know your mum and dad are longing to take you home and care for you themselves. It’s a pity we live so far from each other because I wish I could have been a better support for your parents. And I long so to meet you and see you smile.
    All the very best wishes to you and your mum and dad!
    Bittan

  8. Sorcha

    Hello little Ben,

    I can’t believe you are only here just over a week. You are already such a big part of our lives and always will be. Just yesterday I met your mammy and daddy at the Rotunda. You were just upstairs and I longed to see you. I hope that day comes around very soon. Réiltín has been talking all about you and how you are a very special baby who is sick in the Rotunda hospital where she used to live. You are lucky to have such a fantastic mammy and dadyy who will always love and cherish you. Get well soon Ben, all our prayers and good wishes xxx

  9. Hello little Ben,
    I hope you are feeling much better now and that you are spending all your energy on getting better. I hope that your Mom and Dad are doing ok and that they’re staying strong for you and for each other.
    I think of you everyday and look forward to when I get to meet you.
    Stay strong little love x

  10. mark o connell

    Hi Ben welcome, you look lovely and will be loved because you have got great parents and lots of family who will spoil you . Get better soon so we can all get on with showing you and your mum and dad how special you all are and how much support and love there is out there for you all!

  11. Lynne

    Hi Ben,
    You are so cute and so brave! I hope you get big and strong soon and maybe some day you will be able to play with my two lil boys.
    I hope your mammy and daddy are ok and send you all virtual hugs XX

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