Seven days ago this morning, at 5:08am I was born. It was a fairly quick affair, for which Mum was rather glad, but also a little too quick at the same time.
After I was born, the wonderful midwives and doctors at the Rotunda noticed that I was not doing very well, so they cleaned me up and got me ready to be taken away from Mum and Dad to a special place. I was happy when Mum got to hold me for a minute, but sad also that it was only for a minute.
After they took me to the NICU (neo natal intensive care unit), they had to do lots of things to me, tubes and wires and all sorts of things. Not very nice really, but I figured they had to do it.
I was not able to see Mum and Dad until later in the morning, and when I saw them, they seemed happy and sad at the same time. Apparently, I have a condition that is called Down Syndrome. I’m not too sure what that means yet, but what I do know is that Mum and Dad will look after me and love me, just as much as I will look after them and love them.
Later that evening, I was not feeling well at all. A very nice lady doctor spent a long time with me to make me feel better. When Mum and Dad came in to see me again, they looked sad and also very frightened. The nice lady doctor was talking to them and explained to them what was making me feel so bad. She used lots of words that were complicated and she had a worried look on her face, she also said that I was a very sick baby.
She said that what I had was called Pulmonary Hypertension, and it was something to do with how my breathing had changed from the way babies should breathe when they come out of their Mum’s belly, to how I used to breathe when I was inside Mum’s belly. This is not a good thing, because what happens is that one side of my heart does not get to work how it should, and that affects how my lungs work. My blood pressure gets affected by this, and that means that I am on a lot of medication to make everything work the way it should again.
Since last week, I have been getting better, but very slowly and in small increments. Because I am on so many drugs, getting the balance right is hard. They are trying to wean me off some of the drugs, but sometimes I don’t like that, and they have to go back to the levels I was at before. The ventilator also has a mixture of gases coming into me, and for the moment I still need that, and may need it for some time yet.
All of the lovely nurses in NICU take great care of me, and are very nice to Mum and Dad and they answer all of their questions and that helps them understand things. They don’t hold back with the information that they give them, and although that is hard for Mum and Dad to hear at times, it helps them to know what is going on.
I have a load of neighbours in NICU, and I hope that they get well soon too, I know that everybody there is doing their utmost to help them get better.
Before I go, I want to thank everyone who say hello to me, and who are thinking of me. I know about you all because Mum and Dad tell me of all the nice things you say and do for them when they come and visit, and that helps me to get a little stronger everyday.
Bye for now, I have to go and get better.