So I have now made it to a third children’s hospital in Dublin. On Friday last, I was transferred to Crumlin Children’s Hospital. I much preferred the trip this time around. Moving house went really well this time, all in all it took me about 1hr30mins to get across the city! Bed to bed! During my last transfer it took me that amount of time just to get from incubator into my travel incubator…
Mum and Dad followed me there, and they were really glad to hear that I travelled so well. My new room is even bigger than my last one, and even quieter – I like that, it allows me to get as much rest as possible.
On Saturday, the day I was supposed to have my operation. Did I mention my operation? The doctors think that it will help sort out my pulmonary hypertension, and also help my kidneys to work better. They want to close something that is called my ductus arteriosus (a vein between my heart and lungs), they call the condition Patent Ductus arteriousus or PDA for short. (Dad tells me to tell you that wikipedia have a good explanation of what it is). It all sounds complicated to me, and those words are very big for me… Anyway, the surgeon reckoned that it was not a good time for them to do this, because I had not lost enough fluid, and that it would be bad for me to have the procedure done in my current condition. To add to that, all of that fluid was too much for my little lungs, so on Saturday one of them collapsed, the nurses and doctors fixed me up. Sunday though, the other one had a go. They have been getting better now, and all the docs say they should be fine once they remove the extra fluid I have been carrying.
For a couple of days Dad looked like a duck :) he had a cold and to not spread his germs, he had to wear a mask, I thought he looked funny.
Â I am starting to feel better, and one sign of that is that I turning into a hungry little boy.
Over the last couple of days, they have increasing the amount of milk I have been getting. From two mls every two hours, to five, to twelve. Last night they took me off the drip entirely, and I am now on 24 mls, wohoo!
I have also been able to pee more on my own, but I still need the dialysis, because of all that extra fluid I am still carrying, in my 3rd spaces apparently. Not too sure where that is, but what I do know is that it is not supposed to be there.
Another sign that I am doing better is that Mum and Dad are very happy that everyday I seem to have a better plate count, or should that be plateletsÂ (some of the things they say are very confusing)…
The plan is now that all the doctors are going to talk about me on Thursday, and they will then decide about this operation of mine. Hopefully, they will decide that I am better enough to have it, and then I will be crossing my little fingers to hope that it helps to me out. They think it should, so I really hope it works, because I want to go home, I have more teddys waiting for me that I cannot wait to hug. I think also that Mum and Dad are tired, and would rather I were at home, so that is where I want to be.
The picture below is Mum cleaning my mouth, because i like to blow bubbles, but then my mouth gets all messy, so it has to cleaned. Do you see the lovely bear with name on it? My Dad’s cousin made it for me, and I love it. It came all the way from Sweden! I wish I could have all my teddys, but I’d have no room in my bed if that were the case…
I have to have a little sleep now, so that i can wake up and squeeze Mum and Dad’s finger when to come to see me later. I like that, I like to know they are there, hopefully Dad will read me another story today, and I hope that Mum will have socks for me, and that she will be able to rub some cream into my hands, they get very dry here under my heater.
I know I said it last time, and the time before, but all the same. Thank you to everyone who are thinking of me, and asking about me and sending me their weep wishes, it makes me happy, and i can’t wait to see you all really soon.